New study uses virtual tools to track achondroplasia over time
NCT ID NCT06168201
First seen Jun 27, 2026 · Last updated Jul 01, 2026 · Updated 2 times
Summary
This study observes about 170 children and adults with achondroplasia in the United States over roughly 5 years. Researchers will collect health records and questionnaires to track growth, medical issues, surgeries, and quality of life. The goal is to better understand the condition and how treatments like VOXZOGO™ are used in real life.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Baylor College of Medicine
RECRUITINGHouston, Texas, 77030-2316, United States
Contact
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Johns Hopkins University (JHU)
RECRUITINGBaltimore, Maryland, 21205, United States
Contact
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PicnicHealth
RECRUITINGSan Francisco, California, 94107, United States
Contact Email: •••••@•••••
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Piedmont Health
RECRUITINGStatesville, North Carolina, 28625, United States
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Sanford Health
RECRUITINGSioux Falls, South Dakota, 57115, United States
Contact
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UCSF
RECRUITINGOakland, California, 94609, United States
Contact
Contact
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University of Cincinnati
RECRUITINGCincinnati, Ohio, 45229, United States
Contact
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University of Wisconsin
RECRUITINGMadison, Wisconsin, 53726, United States
Contact