New study uses virtual tools to track achondroplasia over time

NCT ID NCT06168201

Recruiting now Knowledge-focused Sponsor: BioMarin Pharmaceutical Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jul 01, 2026 · Updated 2 times

Summary

This study observes about 170 children and adults with achondroplasia in the United States over roughly 5 years. Researchers will collect health records and questionnaires to track growth, medical issues, surgeries, and quality of life. The goal is to better understand the condition and how treatments like VOXZOGO™ are used in real life.

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Conditions

The condition(s) this trial relates to.

achondroplasia

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

ACHONDROPLASIA

Contacts and locations

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Study contacts

Contact

Email: •••••@•••••

Locations

Baylor College of Medicine
RECRUITING

Houston, Texas, 77030-2316, United States
Johns Hopkins University (JHU)
RECRUITING

Baltimore, Maryland, 21205, United States
PicnicHealth
RECRUITING

San Francisco, California, 94107, United States
Piedmont Health
RECRUITING

Statesville, North Carolina, 28625, United States
Sanford Health
RECRUITING

Sioux Falls, South Dakota, 57115, United States
UCSF
RECRUITING

Oakland, California, 94609, United States
University of Cincinnati
RECRUITING

Cincinnati, Ohio, 45229, United States
University of Wisconsin
RECRUITING

Madison, Wisconsin, 53726, United States

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