Video replays of doctor visits may boost quality of life for ALS patients

NCT ID NCT07454733

Not yet recruiting Symptom relief Sponsor: Trustees of Dartmouth College Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study looks at whether giving people with ALS and their caregivers video recordings of their clinic visits helps them feel better and manage care more easily. About 800 participants (400 patient-caregiver pairs) from eight U.S. sites will be split into two groups: one gets standard written visit summaries, and the other gets both written summaries and video recordings they can watch at home. The goal is to see if the video group reports better quality of life over 12 months.

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Conditions

The condition(s) this trial relates to.

amyotrophic lateral sclerosis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

AMYOTROPHIC LATERAL SCLEROSIS (ALS)

Contacts and locations

Locations

Dartmouth-Hitchcock Health

Lebanon, New Hampshire, 03756, United States
Massachusetts General Hospital

Boston, Massachusetts, 021114, United States
Mayo Clinic Jacksonville

Jacksonville, Florida, 32224, United States
Mayo Clinic Scottsdale

Scottsdale, Arizona, 85259, United States
Penn State Health Milton S. Hersey Medical Center

Hershey, Pennsylvania, 17033, United States
University of Pittsburgh Medical Center

Pittsburgh, Pennsylvania, 15213, United States
University of Wisconsin Health

Madison, Wisconsin, 53792, United States

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