Video replay of doctor visits may boost quality of life in ALS
NCT ID NCT07454733
First seen Mar 07, 2026 · Last updated Apr 28, 2026 · Updated 9 times
Summary
This study looks at whether giving people with ALS and their caregivers video recordings of their clinic visits helps them feel better and remember important information. About 800 participants (400 patient-caregiver pairs) from eight U.S. sites will be split into two groups: one gets standard written notes, the other gets both notes and videos. Researchers will compare quality of life scores over 12 months to see which approach works best.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Dartmouth-Hitchcock Health
Lebanon, New Hampshire, 03756, United States
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Massachusetts General Hospital
Boston, Massachusetts, 021114, United States
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Mayo Clinic Jacksonville
Jacksonville, Florida, 32224, United States
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Mayo Clinic Scottsdale
Scottsdale, Arizona, 85259, United States
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Penn State Health Milton S. Hersey Medical Center
Hershey, Pennsylvania, 17033, United States
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University of Pittsburgh Medical Center
Pittsburgh, Pennsylvania, 15213, United States
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University of Wisconsin Health
Madison, Wisconsin, 53792, United States
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