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Can a structured handoff improve care for rare hormone disorders?

NCT ID NCT07786142

Disease control Sponsor: Seoul National University Hospital Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now This study
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Aug 25, 2026 · Last updated Aug 26, 2026 · Updated 1 time

Summary

This study tests a structured program to help young adults with rare endocrine disorders transition from pediatric to adult care. The program includes readiness assessments, education, and coordinated handoffs between care teams. Researchers will measure whether participants successfully transfer and stay in adult care, as well as their quality of life and satisfaction.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

Active substance
A structured transition-of-care program that includes readiness assessment, education, coordinated transfer, and follow-up.
What this could lead to
If successful, this program could become a model for improving care continuity and quality of life for young adults with rare endocrine disorders.
What could go wrong
The program may not improve outcomes for all participants, and its success depends on individual engagement and healthcare system factors.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Not a phased trial

Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.

Participants

About 150 people

The number the study aims to enrol. It can still change while the study runs.

Started

May 2026

Expected to finish

Dec 2028

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

18 years and older

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Age 18 years or older. * Diagnosis of a pediatric-onset rare endocrine disorder, including rare metabolic bone and mineral disorders, hypopituitarism, congenital adrenal hyperplasia, rare endocrine tumors, and syndromic or chromosomal disorders requiring endocrine care. * Currently receiving follow-up care in the pediatric endocrinology department of a participating institution. * Willing to participate in the standardized transition-of-care program and able to provide written informed consent. Exclusion Criteria: * none

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Conditions

The condition(s) this trial relates to.

endocrine system disorder

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Endocrine disorder Rare disorders

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The places running it

    11 sites. The list below names each one and where it is.

  2. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  3. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Locations

  • Chonnam National University Hospital

    NOT_YET_RECRUITING

    Gwangju, South Korea

  • Chungnam National University Hospital

    NOT_YET_RECRUITING

    Daejeon, South Korea

  • Daegu Catholic University Medical Center

    NOT_YET_RECRUITING

    Daegu, South Korea

  • Hwasun Chonnam National University Hospital

    NOT_YET_RECRUITING

    Hwasun, South Korea

  • Inha University Hospital

    NOT_YET_RECRUITING

    Incheon, South Korea

  • Jeonbuk National University Hospital

    NOT_YET_RECRUITING

    Jeonju, South Korea

  • Konkuk University Medical Center

    NOT_YET_RECRUITING

    Seoul, South Korea

  • Korea University Guro Hospital

    NOT_YET_RECRUITING

    Seoul, South Korea

  • Kyungpook National University Hospital

    NOT_YET_RECRUITING

    Daegu, South Korea

  • Seoul National University Bundang Hospital

    NOT_YET_RECRUITING

    Seongnam, South Korea

  • Seoul National University Hospital

    RECRUITING

    Seoul, 03080, South Korea

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