A cartoon-style program may help children with rare diseases understand their condition and boost mental health

NCT ID NCT06729554

Recruiting now Symptom relief Sponsor: Medical University of Vienna Source: ClinicalTrials.gov ↗

First seen Jul 28, 2026 · Last updated Jul 29, 2026 · Updated 1 time

Summary

This trial tests a short, child-friendly psychoeducation program called Education & Care in RARE for children and teens aged 5–20 with any rare disease. The program uses simple, resource-oriented materials to teach kids about their condition and build coping skills. Researchers will compare those who receive the program right away with a waiting-list group to see if it improves disease knowledge and emotional well-being.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance: a short-term, structured, child-friendly psychoeducation program called Education & Care in RARE
What this could lead to: If effective, this program could offer a simple, scalable way to help children with rare diseases better understand their condition and cope emotionally.
What could go wrong: This is a relatively small trial testing a new educational tool, so results may not apply broadly. The program's benefits depend on children's engagement and may not translate to lasting improvements.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for INBORN ERRORS OF METABOLISM DISORDERS are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Conditions

The condition(s) this trial relates to.

inborn errors of metabolism Rare Diseases

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

INBORN ERRORS OF METABOLISM DISORDERS ORPHAN DISEASES PEDIATRIC DISEASES RARE DISORDERS

Contacts and locations

Locations

Medical University of Graz
RECRUITING

Graz, Austria, 8010, Austria
Medical University of Innsbruck
RECRUITING

Innsbruck, Austria, 6020, Austria
Medical University of Vienna
RECRUITING

Vienna, 1090, Austria
Ordensklinikum Linz
RECRUITING

Linz, 4010, Austria
SALK PMU
RECRUITING

Salzburg, Austria, 5020, Austria
The Faculty of Medicine JKU Linz
RECRUITING

Linz, Austria, 4020, Austria
WIGEV Klinikum Favoriten
RECRUITING

Vienna, Austria, 1100, Austria

More trials for these conditions

Other studies related to the condition(s) this trial covers.