Survey aims to uncover hidden struggles of rare artery disease
NCT ID NCT07351422
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study uses two online questionnaires to learn about the experiences of people with Takayasu arteritis and how doctors manage the condition. About 50 patients and an unspecified number of physicians in the UK will share their views on symptoms, treatment priorities, and unmet needs. The goal is to improve understanding and care for this rare inflammatory artery disease.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this could highlight gaps in care and guide better management strategies for Takayasu arteritis.
- What could go wrong
- This is an observational survey study, not a treatment trial. It collects opinions and may not lead to direct changes in care.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
-
University of Edinburgh
RECRUITINGEdinburgh, United Kingdom
More trials for these conditions
Other studies related to the condition(s) this trial covers.
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- World's largest Takayasu's registry launches to unlock disease secrets