New tool aims to better understand life with scleroderma
NCT ID NCT01848418
First seen Jan 16, 2026 · Last updated May 13, 2026 · Updated 15 times
Summary
This study aimed to create a standard tool (called an ICF Core Set) to measure how systemic sclerosis affects patients' daily lives. Researchers worked with 100 patients and experts to identify the most important areas to assess. The goal was to improve how doctors and researchers understand the disease's impact, not to test a new treatment.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Locations
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Cochin Hospital
Paris, 75014, France
Conditions
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