Swiss launch massive rare disease database to unlock secrets of 500,000 patients
NCT ID NCT05179863
First seen Dec 10, 2025 · Last updated May 07, 2026 · Updated 17 times
Summary
This study is building a national registry for people of any age in Switzerland who have a rare disease or are strongly suspected of having one. The goal is to collect information like diagnosis, symptoms, and genetic data to help researchers understand these diseases better and connect patients with studies. No treatment is given—this is purely about gathering knowledge to improve future care.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Email: •••••@•••••
Locations
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Center for Rare Diseases, Basel
NOT_YET_RECRUITINGBasel, Switzerland
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Center for Rare Diseases, Geneva
RECRUITINGGeneva, Switzerland
Contact
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Center for Rare Diseases, Inselspital
RECRUITINGBern, Switzerland
Contact
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Center for Rare Diseases, Lausanne
RECRUITINGLausanne, Switzerland
Contact
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Center for Rare Diseases, Zurich
NOT_YET_RECRUITINGZurich, Switzerland
Contact
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Centre hospitalier universitaire vaudois, CHUV
RECRUITINGLausanne, Switzerland
Contact
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Centro Malattie Rare della Svizzera Italiana
RECRUITINGBellinzona, Switzerland
Contact
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Hôpitaux universitaires de Genève, HUG
RECRUITINGGeneva, Switzerland
Contact
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Kantonsspital Aarau
RECRUITINGAarau, Switzerland
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Kantonsspital Aarau, Pädiatrie
RECRUITINGAarau, Switzerland
Contact
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Kantonsspital St. Gallen
NOT_YET_RECRUITINGSankt Gallen, Switzerland
Contact
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Ostschweizer Kinderspital
NOT_YET_RECRUITINGSankt Gallen, Switzerland
Contact
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Ostschweizer Zentrum für seltene Krankheiten
NOT_YET_RECRUITINGSankt Gallen, Switzerland
Contact
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Ostschweizer Zentrum für seltene Krankheiten, Pädiatrie
NOT_YET_RECRUITINGSankt Gallen, Switzerland
Contact
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University of Bern, Inselspital Bern
RECRUITINGBern, Switzerland
Contact
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Universitäs-Kinderspital beider Basel, UKBB
NOT_YET_RECRUITINGBasel, Switzerland
Contact
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Universitäts-Kinderspital Zürich, Kispi
RECRUITINGZurich, Switzerland
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Universitätsklinik Balgrist
NOT_YET_RECRUITINGZurich, Switzerland
Contact
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Universitätsspital Basel, USB
NOT_YET_RECRUITINGBasel, Switzerland
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Universitätsspital Zürich, USZ
NOT_YET_RECRUITINGZurich, Switzerland
Contact
Conditions
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