Massive PSC study aims to accelerate drug testing with Real-World data
NCT ID NCT06297993
First seen Nov 01, 2025 · Last updated May 16, 2026 · Updated 23 times
Summary
This study is gathering health information from 2,000 adults with primary sclerosing cholangitis (PSC) to create a comparison group for future drug trials. By collecting symptoms, medical history, and biomarkers over time, researchers hope to make it easier and faster to test new treatments. Participants are not given any experimental drugs—they simply share their regular health data during quarterly and annual visits.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Locations
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Auckland University
RECRUITINGAuckland, New Zealand
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Beth Israel Deaconess Medical Center
RECRUITINGBoston, Massachusetts, 02215, United States
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California Pacific Medical Center
RECRUITINGSan Francisco, California, 94109, United States
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Centre de recherche du centre hospitalier de l'Université de Montréal (CRCHUM)
RECRUITINGMontreal, Quebec, H2X 0A9, Canada
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Indiana University
RECRUITINGIndianapolis, Indiana, 46202, United States
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Massachusetts General Hospital
RECRUITINGBoston, Massachusetts, 02114, United States
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Mayo Clinic
RECRUITINGRochester, Minnesota, 55901, United States
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Oxford University Hospitals
RECRUITINGOxford, OX3 9DU, United Kingdom
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Schiff Center for Liver Diseases / University of Miami
RECRUITINGMiami, Florida, 33136, United States
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UC Davis
RECRUITINGSacramento, California, 95817, United States
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UT Southwestern Medical Center
RECRUITINGDallas, Texas, 75390, United States
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University Health Network
RECRUITINGToronto, Ontario, M5G2C4, Canada
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University Medical Center Hamburg-Eppendorf
RECRUITINGHamburg, Free and Hanseatic City of Hamburg, 20246, Germany
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University of Alberta
RECRUITINGEdmonton, Alberta, T6G 2X8, Canada
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University of California, San Francisco
RECRUITINGSan Francisco, California, 94143, United States
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University of Milano Bicocca
RECRUITINGMilan, Monza (MB), 20900, Italy
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Virginia Commonwealth University
RECRUITINGRichmond, Virginia, 23298, United States
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Yale University
RECRUITINGNew Haven, Connecticut, 06510, United States
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Conditions
Explore the condition pages connected to this study.