Massive PSC study aims to create blueprint for faster drug trials
NCT ID NCT06297993
First seen Jun 27, 2026 · Last updated Jun 30, 2026 · Updated 2 times
Summary
This study is gathering health information from 2,000 adults with primary sclerosing cholangitis (PSC) to build a real-world data comparator group. The goal is to help design and run future drug trials more efficiently by providing a control group from real patient experiences. Participants will share medical history, symptoms, and biomarkers over quarterly and annual visits.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Auckland University
RECRUITINGAuckland, New Zealand
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Beth Israel Deaconess Medical Center
RECRUITINGBoston, Massachusetts, 02215, United States
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California Pacific Medical Center
RECRUITINGSan Francisco, California, 94109, United States
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Centre de recherche du centre hospitalier de l'Université de Montréal (CRCHUM)
RECRUITINGMontreal, Quebec, H2X 0A9, Canada
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Indiana University
RECRUITINGIndianapolis, Indiana, 46202, United States
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Massachusetts General Hospital
RECRUITINGBoston, Massachusetts, 02114, United States
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Mayo Clinic
RECRUITINGRochester, Minnesota, 55901, United States
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Oxford University Hospitals
RECRUITINGOxford, OX3 9DU, United Kingdom
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Schiff Center for Liver Diseases / University of Miami
RECRUITINGMiami, Florida, 33136, United States
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UC Davis
RECRUITINGSacramento, California, 95817, United States
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UT Southwestern Medical Center
RECRUITINGDallas, Texas, 75390, United States
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University Health Network
RECRUITINGToronto, Ontario, M5G2C4, Canada
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University Medical Center Hamburg-Eppendorf
RECRUITINGHamburg, Free and Hanseatic City of Hamburg, 20246, Germany
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University of Alberta
RECRUITINGEdmonton, Alberta, T6G 2X8, Canada
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University of California, San Francisco
RECRUITINGSan Francisco, California, 94143, United States
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University of Milano Bicocca
RECRUITINGMilan, Monza (MB), 20900, Italy
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Virginia Commonwealth University
RECRUITINGRichmond, Virginia, 23298, United States
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Yale University
RECRUITINGNew Haven, Connecticut, 06510, United States
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Other studies related to the condition(s) this trial covers.
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