Can a new questionnaire give patients a stronger voice in vascular malformation care?

This study aims to develop a standardized questionnaire that lets patients with venous malformations report their own symptoms and treatment outcomes. Venous malformations are abnormal veins that can cause pain, swelling, and emotional distress, and current assessments may miss what matters most to patients. The trial will involve children and adults with vascular malformations who are seeking treatment, and it will test how well the new questionnaire captures pain, daily life impact, and treatment effectiveness. The goal is to create a tool that better reflects the patient's perspective, helping doctors understand the true benefits of treatment.