Scientists track rare heart disease to unlock future treatments
NCT ID NCT06644742
Summary
This study aims to learn more about how a specific inherited heart condition (PKP2-ACM) progresses over time in people receiving standard care. Researchers will observe 36 patients who have this genetic variant and an implanted heart device, collecting data on their heart health, symptoms, and quality of life. The goal is to build a detailed picture of the disease to help guide future research and care.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Amsterdam UMC
NOT_YET_RECRUITINGAmsterdam, 1105 AZ, Netherlands
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Boston Children's Hospital
RECRUITINGBoston, Massachusetts, 02116, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
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Duke University
RECRUITINGDurham, North Carolina, 27710, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Conditions
Explore the condition pages connected to this study.