Massive 1000-Patient study launches to map rare lung disease journey
NCT ID NCT06388421
Summary
This study aims to better understand a serious condition where high blood pressure develops in the lungs due to underlying lung scarring. Researchers will follow 1,000 patients for up to 5 years to track their health, treatments, and quality of life. The goal is to gather real-world information to help improve future care, not to test a new treatment.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Advent Health Medical Group Advanced Lung Disease
RECRUITINGOrlando, Florida, 32804, United States
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Advocate Christ Medical Center
RECRUITINGOak Lawn, Illinois, 60453, United States
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AnMed Health
RECRUITINGAnderson, South Carolina, 29621, United States
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Ascension St. Vincent
RECRUITINGIndianapolis, Indiana, 46260, United States
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Aurora St. Luke's Medical Center
RECRUITINGMilwaukee, Wisconsin, 53215, United States
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Auxilio Mutuo Hospital
RECRUITINGGuaynabo, Puerto Rico, 00968, Puerto Rico
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Banner Health - University Medical Center Phoenix
RECRUITINGPhoenix, Arizona, 85006, United States
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Baylor University Medical Center
RECRUITINGDallas, Texas, 75246, United States
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Duke University School of Medicine
RECRUITINGDurham, North Carolina, 27710, United States
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East Carolina University Health
RECRUITINGGreenville, North Carolina, 27834, United States
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Emory University
RECRUITINGAtlanta, Georgia, 30322, United States
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Houston Methodist
RECRUITINGHouston, Texas, 77030, United States
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Inova Medical Group
RECRUITINGFalls Church, Virginia, 22042, United States
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Intercoastal Medical Group
RECRUITINGSarasota, Florida, 34239, United States
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Intermountain Medical Center
RECRUITINGMurray, Utah, 84157, United States
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Legacy Research Institute
RECRUITINGPortland, Oregon, 97210, United States
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Loyola University Medical Center
RECRUITINGMaywood, Illinois, 60153, United States
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Marshall Health
RECRUITINGHuntington, West Virginia, 25701, United States
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Medical College of Wisconsin
RECRUITINGMilwaukee, Wisconsin, 53226, United States
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Medical University of South Carolina
RECRUITINGCharleston, South Carolina, 29425, United States
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Morristown Medical Center
RECRUITINGMorristown, New Jersey, 07960, United States
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NCH Research Institute
RECRUITINGNaples, Florida, 34102, United States
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National Jewish Health
RECRUITINGDenver, Colorado, 80206, United States
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New York Presbyterian Hospital - Weill Cornell Medicine
RECRUITINGNew York, New York, 10021, United States
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New York University Langone Medical Center
RECRUITINGNew York, New York, 10016, United States
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Northwell Health
RECRUITINGNew Hyde Park, New York, 11042, United States
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Northwestern University
RECRUITINGChicago, Illinois, 60611, United States
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Norton Pulmonary Specialists
RECRUITINGLouisville, Kentucky, 40202, United States
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Ohio State Richard M. Ross Heart Hospital
RECRUITINGColumbus, Ohio, 43210, United States
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Oklahoma Heart Institute
RECRUITINGTulsa, Oklahoma, 74104, United States
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Oregon Health & Science University
RECRUITINGPortland, Oregon, 97239, United States
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Pulmonary Associates of Richmond, Inc.
RECRUITINGRichmond, Virginia, 23230, United States
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Pulmonix, LLC
RECRUITINGGreensboro, North Carolina, 27403, United States
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St. Luke's University Health Network
RECRUITINGBethlehem, Pennsylvania, 18015, United States
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StatCare Pulmonary Consultants and Center for Biomedical Research
RECRUITINGKnoxville, Tennessee, 37909, United States
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Summit Health
RECRUITINGBend, Oregon, 97701, United States
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Tampa General Hospital/University of South Florida Health
RECRUITINGTampa, Florida, 33606, United States
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Temple Lung Center
RECRUITINGPhiladelphia, Pennsylvania, 19140, United States
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Temple University Hospital
RECRUITINGPhiladelphia, Pennsylvania, 19140, United States
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The Cleveland Clinic
RECRUITINGCleveland, Ohio, 44195, United States
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The University of Oklahoma Health Sciences Center
RECRUITINGOklahoma City, Oklahoma, 73104, United States
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Thomas Jefferson University - Sidney Kimmel Medical College
RECRUITINGPhiladelphia, Pennsylvania, 19107, United States
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UT Southwest Medical Center Heart and Lung Clinic
RECRUITINGDallas, Texas, 75390, United States
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University Medical Center - New Orleans
RECRUITINGNew Orleans, Louisiana, 70112, United States
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University of Alabama at Birmingham
RECRUITINGBirmingham, Alabama, 35294, United States
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University of Cincinnati Medical Center
RECRUITINGCincinnati, Ohio, 45219, United States
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University of Colorado - Anschutz Medical Campus
RECRUITINGAurora, Colorado, 80045, United States
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University of Florida
RECRUITINGGainesville, Florida, 32610, United States
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University of Kansas Medical Center
RECRUITINGKansas City, Kansas, 66160, United States
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University of Maryland Medical Center
RECRUITINGBaltimore, Maryland, 21201, United States
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University of New Mexico Health Sciences Center
RECRUITINGAlbuquerque, New Mexico, 87131, United States
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University of North Carolina at Chapel Hill
RECRUITINGChapel Hill, North Carolina, 27514, United States
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University of Pennsylvania
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
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University of Texas Health Science Center at Houston
RECRUITINGHouston, Texas, 77030, United States
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University of Utah Health
RECRUITINGSalt Lake City, Utah, 84108, United States
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University of Wisconsin Hospital and Clinics
RECRUITINGMadison, Wisconsin, 53792, United States
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Virginia Commonwealth University
RECRUITINGRichmond, Virginia, 23298, United States
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Wakemed Health and Hospital
RECRUITINGRaleigh, North Carolina, 27610-1231, United States
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Washington University School of Medicine
RECRUITINGSt Louis, Missouri, 63110, United States
Contact Phone: •••-•••-••••
Conditions
Explore the condition pages connected to this study.