Timing of palliative care for kids with brain disease under review

NCT ID NCT06273267

First seen Jun 26, 2026 · Last updated Jun 26, 2026

Summary

This study looked at 126 children and young adults (up to age 25) with serious, non-progressive neurological diseases like cerebral palsy or brain injury. Researchers wanted to understand the best time to introduce a pediatric palliative care team. They reviewed medical records from the first year of care to see what kind of support was given first, such as symptom management or care coordination.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this study could help doctors know the best time to start palliative care for children with serious brain conditions, improving their quality of life.

What could go wrong

This is a small, completed observational study in one region of France, so results may not apply to other areas or populations. It does not test a new treatment.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

brain disorder central nervous system malformation cerebral palsy head injury traumatic brain injury

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Hôpital Necker-Enfants Malades

    Paris, 75015, France