Rare nasal cancer under the microscope: new study aims to unlock secrets

NCT ID NCT04755205

First seen Jun 27, 2026 · Last updated Aug 14, 2026 · Updated 14 times

Summary

This study is following children and adults with olfactory neuroblastoma, a rare cancer of the nasal cavity, to learn more about how the disease behaves over time. Researchers will collect medical records, blood samples, and survey responses from 525 participants to track symptoms, treatment responses, and outcomes. The goal is to better understand the disease and pave the way for improved treatments and supportive care.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to
If successful, this study could provide crucial insights into how olfactory neuroblastoma progresses and responds to treatments, guiding better care strategies.
What could go wrong
This is an observational study, not a treatment trial, so it won't directly test new therapies. Results may take years and might not lead to immediate changes in care.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

esthesioneuroblastoma Esthesioneuroblastoma, Olfactory olfactory neuroblastoma

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • National Institutes of Health Clinical Center

    RECRUITING

    Bethesda, Maryland, 20892, United States

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