New study aims to sharpen tools for testing kids with rare muscle disease
NCT ID NCT06847282
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study is testing different ways to measure muscle strength and movement in children with a rare muscle disease called FSHD. The goal is to find the best tests to use in future studies of new treatments. About 80 children aged 5 to 17 with confirmed FSHD will take part. The results will help design better clinical trials for this condition.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Duke University
RECRUITINGDurham, North Carolina, 27708, United States
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Murdoch Children's Research Institute
RECRUITINGMelbourne, Australia
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Stanford University
NOT_YET_RECRUITINGPalo Alto, California, 94304, United States
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University of Iowa
NOT_YET_RECRUITINGIowa City, Iowa, 52242, United States
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University of Kansas Medical Center
RECRUITINGKansas City, Kansas, 66160, United States
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University of Rochester
RECRUITINGRochester, New York, 14642, United States
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University of Utah
NOT_YET_RECRUITINGSalt Lake City, Utah, 84112, United States
More trials for these conditions
Other studies related to the condition(s) this trial covers.
- New hope for FSHD: Long-Term drug safety trial underway
- New hope for FSHD: experimental drug AOC 1020 completes early testing
- FSHD patients unite: new registry aims to accelerate research and care
- Could a common asthma drug help with a rare muscle disease? new study launches.
- New hope for rare muscle disease: experimental drug enters human trials