Camp curriculum aims to boost pregnancy outcomes in rare metabolic disorders

NCT ID NCT01659749

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study looks at whether a special camp that teaches teens and young women with PKU or MSUD about their condition and nutrition can improve their pregnancy outcomes and quality of life. Researchers will compare the results of women who attended the camp to those who did not. The study involves 200 participants and focuses on changes in blood amino acid levels and diet during the camp.

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Conditions

The condition(s) this trial relates to.

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Emory University Department of Human Genetics

    RECRUITING

    Atlanta, Georgia, 30322, United States

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