Massive MDS study aims to unlock secrets of rare bone marrow disease

NCT ID NCT05350748

First seen Jan 11, 2026 · Last updated Apr 28, 2026 · Updated 17 times

Summary

This study follows up to 1,100 people with myelodysplastic syndromes (MDS) and healthy donors for up to 20 years. Researchers collect blood, bone marrow, and other samples to learn how the disease progresses and to find better treatments. No experimental therapy is given; the goal is to gather information and samples for future research.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • National Institutes of Health Clinical Center

    RECRUITING

    Bethesda, Maryland, 20892, United States

    Contact Phone: •••-•••-••••

Conditions

Explore the condition pages connected to this study.