Can a website save lives? new study aims to boost lung transplant awareness in CF patients
NCT ID NCT06030206
First seen Jan 10, 2026 · Last updated Apr 25, 2026 · Updated 15 times
Summary
This study tests whether a website with educational resources helps people with cystic fibrosis (CF) feel more prepared to discuss lung transplant with their doctors. About 132 adults with CF and low lung function will take part over 6 months. The goal is to reduce the number of people who die without considering transplant, especially among marginalized groups.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Baylor College of Medicine
Houston, Texas, 77030, United States
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Johns Hopkins University
Baltimore, Maryland, 21205, United States
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Maine Health
Portland, Maine, 04102, United States
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National Jewish Health
Denver, Colorado, 80206, United States
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University of California at Los Angeles (UCLA)
Los Angeles, California, 980095, United States
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University of Cincinnati
Cincinnati, Ohio, 45267, United States
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University of Kansas
Kansas City, Kansas, 66160, United States
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University of Minnesota
Minneapolis, Minnesota, 55455, United States
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University of Pittsburgh
Pittsburgh, Pennsylvania, 15213, United States
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University of Washington Medical Center - Montlake
Seattle, Washington, 98195, United States
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Yale University
New Haven, Connecticut, 06520, United States
Conditions
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