New study aims to help cystic fibrosis patients discuss lung transplants earlier

NCT ID NCT06030206

Ongoing Knowledge-focused Sponsor: University of Washington Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study tests whether a research website helps people with cystic fibrosis (CF) feel more prepared to discuss lung transplant with their doctors. About 132 adults with CF and low lung function will use the website and attend Zoom sessions over 6 months. The goal is to increase awareness and reduce the number of people who die without considering transplant, especially among marginalized groups.

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Conditions

The condition(s) this trial relates to.

cystic fibrosis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

CYSTIC FIBROSIS

Contacts and locations

Locations

Baylor College of Medicine

Houston, Texas, 77030, United States
Johns Hopkins University

Baltimore, Maryland, 21205, United States
Maine Health

Portland, Maine, 04102, United States
National Jewish Health

Denver, Colorado, 80206, United States
University of California at Los Angeles (UCLA)

Los Angeles, California, 980095, United States
University of Cincinnati

Cincinnati, Ohio, 45267, United States
University of Kansas

Kansas City, Kansas, 66160, United States
University of Minnesota

Minneapolis, Minnesota, 55455, United States
University of Pittsburgh

Pittsburgh, Pennsylvania, 15213, United States
University of Washington Medical Center - Montlake

Seattle, Washington, 98195, United States
Yale University

New Haven, Connecticut, 06520, United States

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