Global PCD study seeks participants to track daily life and symptoms

NCT ID NCT04602481

Recruiting now Knowledge-focused Sponsor: University of Bern Source: ClinicalTrials.gov ↗

First seen Jan 10, 2026 · Last updated May 22, 2026 · Updated 21 times

Summary

This study follows people with primary ciliary dyskinesia (PCD) to learn more about their symptoms, treatments, and daily life. Anyone with suspected or confirmed PCD can join from anywhere in the world. Participants fill out questionnaires when they start and then once a year, with extra surveys on special topics. The goal is to improve health and quality of life for people with PCD.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

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Study contacts

Contact

Phone: •••-•••-•••• Email: •••••@•••••
Contact

Phone: •••-•••-•••• Email: •••••@•••••

Locations

Institute of Social and Preventive Medicine (ISPM), University of Bern
RECRUITING

Bern, 3012, Switzerland

Contact Phone: •••-•••-•••• Email: •••••@•••••

Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.

PRIMARY CILIARY DYSKINESIA