300-Patient study aims to unlock secrets of rare lung disease
NCT ID NCT05951478
First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This study is gathering health and genetic information from 300 people with Primary Ciliary Dyskinesia (PCD), a rare inherited lung condition. Researchers want to identify factors that make the disease more severe, find new genes linked to PCD, and measure how the disease affects quality of life. The goal is to improve early and personalized care for patients.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this could help doctors predict which patients will have more severe disease and personalize their care earlier.
- What could go wrong
- This is an observational study, not a treatment trial. It will not directly test any new drug or therapy, so it may not lead to immediate changes in care.
This is an AI summary of the original study and may miss details. Read our disclaimer.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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American Memorial Hospital
RECRUITINGReims, France
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CHU de Caen
NOT_YET_RECRUITINGCaen, France
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Centre Hospitalier Intercommunal de Créteil
RECRUITINGCréteil, France
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Centre Hospitalier Intercommunal de Créteil
NOT_YET_RECRUITINGCréteil, France
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Centre Hospitalier Intercommunal de Créteil
RECRUITINGCréteil, France
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Hospices Civils
RECRUITINGStrasbourg, France
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Hôpital Armand Trousseau
RECRUITINGParis, France
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Hôpital Armand Trousseau
RECRUITINGParis, France
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Hôpital Arnaud de Villeneuve
RECRUITINGMontpellier, France
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Hôpital Arnaud de Villeneuve
NOT_YET_RECRUITINGMontpellier, France
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Hôpital Bichat
RECRUITINGParis, France
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Hôpital Bicêtre
RECRUITINGLe Kremlin-Bicêtre, France
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Hôpital Charles Nicolle
NOT_YET_RECRUITINGRouen, France
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Hôpital Clémenceau
NOT_YET_RECRUITINGCaen, France
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Hôpital Cochin
RECRUITINGParis, France
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Hôpital Femme-Mère-Enfant
RECRUITINGLyon, France
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Hôpital Hautepierre
NOT_YET_RECRUITINGStrasbourg, France
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Hôpital Henri Mondor
RECRUITINGCréteil, France
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Hôpital Jean Minjoz
NOT_YET_RECRUITINGBesançon, France
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Hôpital Jeanne de Flandre
RECRUITINGLille, France
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Hôpital Larrey
NOT_YET_RECRUITINGToulouse, France
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Hôpital Le Bocage
NOT_YET_RECRUITINGDijon, France
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Hôpital Lenval
NOT_YET_RECRUITINGNice, France
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Hôpital Louis Pradel
RECRUITINGLyon, France
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Hôpital Necker-Enfants Malades
RECRUITINGParis, France
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Hôpital Nord
RECRUITINGMarseille, France
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Hôpital Pellegrin-Enfants
NOT_YET_RECRUITINGBordeaux, France
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Hôpital Robert Debré
NOT_YET_RECRUITINGParis, France
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Hôpital Tenon
RECRUITINGParis, France
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Hôpital de Clocheville
NOT_YET_RECRUITINGTours, France
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Hôpital de la Timone
NOT_YET_RECRUITINGMarseille, France
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Hôpital des Enfants
RECRUITINGToulouse, France
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