Massive global hunt for answers to devastating brain diseases
NCT ID NCT03047369
Summary
This study aims to collect medical information and biological samples from 12,000 people worldwide with rare genetic brain disorders called leukodystrophies. Researchers will use this data to better understand these diseases, improve diagnosis, and identify targets for future treatments. The study does not test a specific treatment but builds a foundation for future research.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Akron Children's Hospital
RECRUITINGAkron, Ohio, 44308, United States
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Ann & Robert H. Lurie Children's Hospital of Chicago
RECRUITINGChicago, Illinois, 60611, United States
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Atrium Health Wake Forest Baptist
RECRUITINGWinston-Salem, North Carolina, 27157, United States
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Baylor College of Medicine (Texas Children's Hospital)
RECRUITINGHouston, Texas, 77030, United States
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Children's Hospital of Los Angeles
RECRUITINGLos Angeles, California, 90027, United States
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Children's Hospital of Orange County
RECRUITINGOrange, California, 92868, United States
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Children's National Medical Center
RECRUITINGWashington D.C., District of Columbia, 20010, United States
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Emory University (Children's Healthcare of Atlanta)
RECRUITINGAtlanta, Georgia, 30342, United States
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Kennedy Krieger Institute
RECRUITINGBaltimore, Maryland, 21205, United States
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Massachusetts General Hospital (MGH)
RECRUITINGBoston, Massachusetts, 02114, United States
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Mayo Clinic
RECRUITINGRochester, Minnesota, 55905, United States
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Nationwide Children's Hospital
RECRUITINGColumbus, Ohio, 43205, United States
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Seattle Children's Hospital
RECRUITINGSeattle, Washington, 98105, United States
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Stanford University (Lucile Packard Children's Hospital)
RECRUITINGPalo Alto, California, 94304, United States
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The Children's Hospital of Philadelphia
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
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Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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UCSF Benioff Children's Hospital
RECRUITINGSan Francisco, California, 94158, United States
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UT Health Houston
RECRUITINGHouston, Texas, United States
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University of California, Davis (UC Davis Health)
RECRUITINGSacramento, California, 95817, United States
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University of California, San Diego (Rady Children's Hospital)
RECRUITINGSan Diego, California, 92123, United States
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University of Minnesota
RECRUITINGMinneapolis, Minnesota, 55454, United States
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University of Pennsylvania
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
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University of Pittsburgh Medical Center
RECRUITINGPittsburgh, Pennsylvania, 15219, United States
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University of Utah (Primary Children's Hospital)
RECRUITINGSalt Lake City, Utah, 84112, United States
Contact
Conditions
Explore the condition pages connected to this study.