Massive lung disease registry aims to unlock secrets of progressive fibrosis

NCT ID NCT01915511

Recruiting now Knowledge-focused Sponsor: Duke University Source: ClinicalTrials.gov ↗

First seen Jun 26, 2026 · Last updated Aug 13, 2026 · Updated 5 times

Summary

This registry is following 3,000 adults with idiopathic pulmonary fibrosis (IPF) or other chronic fibrosing interstitial lung diseases (ILDs) to understand how these conditions progress over time. Researchers collect information on symptoms, treatments, quality of life, and store blood samples and lung scans for future studies. The goal is to learn more about the natural history of these diseases and improve care, but participants receive no experimental treatment.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this registry could provide valuable insights into how these lung diseases progress and how they are best managed, potentially guiding future treatments.
What could go wrong: This is an observational registry, not a treatment trial. It collects data only, so it won't directly improve health for participants. Results depend on accurate reporting and may take years to yield useful findings.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

asbestosis hypersensitivity pneumonitis idiopathic pulmonary fibrosis interstitial lung disease non-specific interstitial pneumonia pulmonary fibrosis pulmonary systemic sclerosis rheumatoid arthritis-associated interstitial lung disease sarcoidosis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

IDIOPATHIC PULMONARY FIBROSIS, INTERSTITIAL LUNG DISEASE

Contacts and locations

Locations

Baylor College of Medicine
RECRUITING

Houston, Texas, 77030, United States
Baylor University Medical Center at Dallas
RECRUITING

Dallas, Texas, 75246, United States
Cleveland Clinic
RECRUITING

Cleveland, Ohio, 44195, United States
Duke University
RECRUITING

Durham, North Carolina, 27705, United States
Emory University
RECRUITING

Atlanta, Georgia, 30322, United States
Henry Ford Health
RECRUITING

Detroit, Michigan, 48202, United States
Houston Methodist Lung Center
RECRUITING

Houston, Texas, 77030, United States
Inova
RECRUITING

Falls Church, Virginia, 22042-3307, United States
Loyola University Health System
RECRUITING

Maywood, Illinois, 60153, United States
Medical University of South Carolina
RECRUITING

Charleston, South Carolina, 29425, United States
NYU Medical Center
ACTIVE_NOT_RECRUITING

New York, New York, 10016, United States
Northwestern University
RECRUITING

Evanston, Illinois, 60611, United States
Oregon Clinic
RECRUITING

Portland, Oregon, 97220, United States
PMG Research
ACTIVE_NOT_RECRUITING

Wilmington, North Carolina, 28401, United States
Piedmont Healthcare
RECRUITING

Austell, Georgia, 30106, United States
Pulmonix LLC
RECRUITING

Greensboro, North Carolina, 27403, United States
Stanford University
RECRUITING

Stanford, California, 94305, United States
Temple University
RECRUITING

Philadelphia, Pennsylvania, 19140, United States
The Medical College of Wisconsin
ACTIVE_NOT_RECRUITING

Milwaukee, Wisconsin, 53226, United States
The Ohio State University
RECRUITING

Columbus, Ohio, 43210, United States
The University of Texas Health Science Center At Houston
RECRUITING

Houston, Texas, 77030, United States
Thomas Jefferson University
RECRUITING

Philadelphia, Pennsylvania, 19144, United States
Tulane University
RECRUITING

New Orleans, Louisiana, 70112, United States
UNC Chapel Hill
RECRUITING

Chapel Hill, North Carolina, 27514, United States
University from Virginia
ACTIVE_NOT_RECRUITING

Charlottesville, Virginia, 22908, United States
University of Alabama - Birmingham
RECRUITING

Birmingham, Alabama, 35294, United States
University of Arizona
RECRUITING

Tucson, Arizona, 85721, United States
University of California - Los Angeles
RECRUITING

Los Angeles, California, 90024, United States
University of Chicago
RECRUITING

Chicago, Illinois, 60637, United States
University of Cincinnati Medical Center
ACTIVE_NOT_RECRUITING

Cincinnati, Ohio, 45267, United States
University of Colorado
RECRUITING

Aurora, Colorado, 80045, United States
University of Florida
RECRUITING

Gainesville, Florida, 32610-3175, United States
University of Kansas
TERMINATED

Kansas City, Kansas, 66160, United States
University of Michigan
ACTIVE_NOT_RECRUITING

Ann Arbor, Michigan, 48109, United States
University of Minnesota
RECRUITING

Minneapolis, Minnesota, 55455, United States
University of Mississippi Medical Center
RECRUITING

Jackson, Mississippi, 39216, United States
University of Oklahoma
RECRUITING

Oklahoma City, Oklahoma, 73104, United States
University of South Florida
RECRUITING

Tampa, Florida, 33606, United States
University of Southern California
RECRUITING

Los Angeles, California, 90033, United States
University of Texas Southwestern
RECRUITING

Dallas, Texas, 75235, United States
University of Utah
RECRUITING

Salt Lake City, Utah, 84108, United States
University of Vermont Lung Center
ACTIVE_NOT_RECRUITING

Colchester, Vermont, 05446, United States
Vanderbilt University
RECRUITING

Nashville, Tennessee, 37232, United States
Wake Forest Baptist Health
RECRUITING

Winston-Salem, North Carolina, 27157, United States
Washington University
RECRUITING

St Louis, Missouri, 63110, United States
Weill Medical College of Cornell University
RECRUITING

New York, New York, 10065, United States
Yale University
RECRUITING

New Haven, Connecticut, 06520, United States

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