Study explores how family and friends impact caregiver health
NCT ID NCT01498263
First seen Jun 27, 2026 · Last updated Jul 01, 2026 · Updated 2 times
Summary
This completed study looked at how the social networks of caregivers affect their stress and health when caring for someone with an inherited disease. Researchers surveyed over 680 participants, including family members and formal caregivers, to understand caregiving burden and support systems. The goal is to use these insights to design better interventions that help caregivers cope and stay healthy.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this research could point toward better ways to support caregivers of people with inherited diseases, improving their well-being and coping skills.
What could go wrong
This is an observational study, not a treatment trial. It cannot directly change disease outcomes, and findings may not apply to all caregiving situations.
Disclaimer
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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National Institutes of Health Clinical Center
Bethesda, Maryland, 20892, United States
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University of Memphis
Memphis, Tennessee, 38152, United States