New app aims to empower adults born with heart defects

NCT ID NCT06581484

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study tests a digital app called Empower My Congenital Health (EmpowerMyCH) designed to help adults with congenital heart disease navigate the healthcare system. Researchers will enroll 1,000 participants to see if the app is easy to use, acceptable, and helps patients feel more in control of their health. The app includes a digital medical passport, health information, and community support.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance

Digital patient empowerment app (Empower My Congenital Health)

What this could lead to

If successful, this app could help adults with congenital heart disease feel more confident and engaged in managing their own healthcare.

What could go wrong

This is an early feasibility study with no direct health outcome measures. The app may not improve health or be widely adopted.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

congenital heart disease Health Behavior Patient Participation

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • University of California, San Francisco

    RECRUITING

    San Francisco, California, 94117, United States