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Scientists launch major study to track rare immune diseases

NCT ID NCT00128973

Recruiting now Knowledge-focused Sponsor: National Institute of Allergy and Infectious Diseases (NIAID) Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jul 01, 2026 · Updated 2 times

Summary

This study is observing up to 3,500 people with immune system problems, including rare genetic conditions like chronic granulomatous disease and severe combined immunodeficiency. Researchers will track how these diseases change over time through blood tests, imaging, and checkups. The goal is to better understand these conditions and prepare for future treatment trials.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this study could help researchers develop better treatments for rare immune disorders by understanding how these diseases progress.

What could go wrong

This is an observational study, not a treatment trial. It may not directly benefit participants and is focused on gathering data rather than testing a new therapy.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

Bronchiolitis Obliterans Syndrome chronic granulomatous disease graft versus host disease hereditary disease Infections leukocyte adhesion deficiency 1 Reinfection T-B+ severe combined immunodeficiency due to gamma chain deficiency X-Linked Combined Immunodeficiency Diseases

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

CHRONIC GRANULOMATOUS DISEASE (CGD) GRAFT VERSUS HOST DISEASE (CGVHD) LEUKOCYTE ADHESION DEFICIENCY 1 (LAD) X-LINKED SEVERE COMBINED IMMUNE DEFICIENCY (XSCID)

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • National Institutes of Health Clinical Center

    RECRUITING

    Bethesda, Maryland, 20892, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••