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Promising drug combo may stop painful flare-ups in rare bone disease

NCT ID NCT06724562

Recruiting now Disease control Sponsor: University of California, San Francisco Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study looks at whether anti-inflammatory drugs (like anakinra or canakinumab) can reduce painful flare-ups and prevent extra bone growth in people with a rare genetic condition called fibrodysplasia ossificans progressiva (FOP). Eleven people with severe FOP will be tracked before and during treatment. The goal is to gather data needed for a larger future study.

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Conditions

The condition(s) this trial relates to.

fibrodysplasia ossificans progressiva myositis ossificans Ossification, Heterotopic

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

FIBRODYSPLASIA OSSIFICANS PROGRESSIVA (FOP)

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • UCSF

    RECRUITING

    San Francisco, California, 94143, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••