FIBRODYSPLASIA OSSIFICANS PROGRESSIVA (FOP)
Clinical trials for FIBRODYSPLASIA OSSIFICANS PROGRESSIVA (FOP) explained in plain language.
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New drug aims to stop extra bone formation in rare disease
Disease control Recruiting nowThis Phase 2 trial tests an experimental drug called INCB000928 (zilurgisertib) in people with fibrodysplasia ossificans progressiva (FOP), a rare genetic condition where soft tissues turn into bone. About 98 participants aged 2 and older will receive either the drug or a placebo…
Matched conditions: FIBRODYSPLASIA OSSIFICANS PROGRESSIVA (FOP)
Phase: PHASE2 • Sponsor: Incyte Corporation • Aim: Disease control
Last updated Jun 27, 2026 12:36 UTC
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Promising drug combo may stop painful flare-ups in rare bone disease
Disease control Recruiting nowThis study looks at whether anti-inflammatory drugs (like anakinra or canakinumab) can reduce painful flare-ups and prevent extra bone growth in people with a rare genetic condition called fibrodysplasia ossificans progressiva (FOP). Eleven people with severe FOP will be tracked …
Matched conditions: FIBRODYSPLASIA OSSIFICANS PROGRESSIVA (FOP)
Sponsor: University of California, San Francisco • Aim: Disease control
Last updated Jun 27, 2026 09:09 UTC
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Worldwide FOP database launches to unlock secrets of rare bone disease
Knowledge-focused Recruiting nowThis global registry collects information from people with Fibrodysplasia Ossificans Progressiva (FOP), a rare condition where soft tissues turn into bone. Up to 800 patients worldwide can report their symptoms, flare-ups, and mobility changes through a secure online portal. The …
Matched conditions: FIBRODYSPLASIA OSSIFICANS PROGRESSIVA (FOP)
Sponsor: The International FOP Association • Aim: Knowledge-focused
Last updated Jun 27, 2026 12:05 UTC