Researchers aim to create a universal checklist for scleroderma

NCT ID NCT01848418

Completed Knowledge-focused Sponsor: Assistance Publique - Hôpitaux de Paris Source: ClinicalTrials.gov ↗

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study aimed to create a standard set of items, called an ICF core set, to describe the health and functioning of people with systemic sclerosis (scleroderma). Researchers gathered input from 100 patients and experts to identify the most important aspects of the disease. The goal is to improve communication and assessment in both clinical care and research.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this could provide a standardized tool to better assess and communicate the impact of systemic sclerosis on patients' lives.
What could go wrong: This is an observational, knowledge-gathering study, not a treatment trial. The core set may not be adopted widely or may need further validation.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

systemic sclerosis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

SYSTEMIC SCLEROSIS

Contacts and locations

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Locations

Cochin Hospital

Paris, 75014, France

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