New study aims to better understand how scleroderma affects daily life

NCT ID NCT01848418

First seen Jan 16, 2026 · Last updated May 24, 2026 · Updated 18 times

Summary

This study involved 113 adults with systemic sclerosis (scleroderma) to develop a standard way to measure how the disease affects their daily life and functioning. Researchers worked with patients and experts to create a list of important items. The goal is to improve how doctors assess and treat the condition.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • Cochin Hospital

    Paris, 75014, France

Conditions

Explore the condition pages connected to this study.