Family secrets: how we share (or hide) our health risks
NCT ID NCT01633021
Summary
This study aimed to learn how family members share health information when someone has a genetic-related disease like sickle cell, diabetes, or cancer. Over 1,000 adults who either had such a disease or were related to someone who did completed surveys about their family's health history and support. The goal was to use this information to help design better family support and health promotion plans in the future.
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Contacts and locations
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Locations
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Cincinnati Children's Hospital Medical Center
Cincinnati, Ohio, 45229-3039, United States
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Geisinger Autism & Developmental Medicine Institute
Lewisburg, Pennsylvania, 17837, United States
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National Human Genome Research Institute (NHGRI), 9000 Rockville Pike
Bethesda, Maryland, 20892, United States
Conditions
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