New HLH registry aims to unlock secrets of rare immune disease
NCT ID NCT05277272
First seen Jan 10, 2026 · Last updated Apr 28, 2026 · Updated 16 times
Summary
This study is a registry that collects information from people with hemophagocytic lymphohistiocytosis (HLH), a rare condition where the immune system becomes overactive and damages the body. Researchers will track how the disease develops, what treatments are used, and how patients respond over time. The goal is to learn more about HLH to improve future care.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Cincinnati Children's Hospital Medical Center
RECRUITINGCincinnati, Ohio, 45229, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Conditions
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