New HLH registry aims to unlock secrets of rare immune disease

NCT ID NCT05277272

Recruiting now Knowledge-focused Sponsor: Children's Hospital Medical Center, Cincinnati Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study is a registry that collects information from 200 people with hemophagocytic lymphohistiocytosis (HLH), a rare condition where the immune system becomes dangerously overactive. Researchers will track how quickly HLH is diagnosed, what treatments are used, and what complications or long-term effects occur. The goal is to better understand the disease and improve future care.

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Conditions

The condition(s) this trial relates to.

hemophagocytic syndrome Lymphohistiocytosis, Hemophagocytic

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

HEMOPHAGOCYTIC LYMPHOHISTIOCYTOSES

Contacts and locations

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Study contacts

Contact

Email: •••••@•••••
Contact

Phone: •••-•••-•••• Email: •••••@•••••

Locations

Cincinnati Children's Hospital Medical Center
RECRUITING

Cincinnati, Ohio, 45229, United States

Contact Phone: •••-•••-•••• Email: •••••@•••••

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