New registry aims to unlock secrets of rare bleeding disorder
NCT ID NCT04150822
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study is creating a registry of people with Hereditary Hemorrhagic Telangiectasia (HHT), a rare condition that causes abnormal blood vessels and frequent nosebleeds. Researchers will collect health information from about 1,000 adults over many years to see how the disease changes and what factors affect it. The goal is to better understand HHT and improve future treatments.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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St. Michael's Hospital
Toronto, Ontario, M5B1W8, Canada
More trials for these conditions
Other studies related to the condition(s) this trial covers.
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