HHT patients wanted for landmark registry study
NCT ID NCT04150822
First seen May 03, 2026 · Last updated May 16, 2026 · Updated 2 times
Summary
This study is creating a registry of up to 1,000 adults with Hereditary Hemorrhagic Telangiectasia (HHT) from four North American centers. Researchers will collect health information over time to learn how the disease changes and what factors affect those changes. The goal is to better understand HHT and improve future treatments.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Locations
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St. Michael's Hospital
Toronto, Ontario, M5B1W8, Canada
Conditions
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