Global study probes patient views on gene therapy for hemophilia b
NCT ID NCT05044845
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study interviewed 150 people with hemophilia B, their caregivers, and healthcare workers from around the world to learn what they know and how they feel about gene therapy. The goal is to create better educational materials and improve the consent process, especially in countries with limited resources. No treatment was given—only interviews were conducted.
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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Civil Service Hospital
Kathmandu, Nepal
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Hospital Dos De Mayo
Lima, Peru
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National Hospital of Sri Lanka
Colombo, 01000, Sri Lanka
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National Institute of Hematology and Blood Transfusion
Hanoi, Vietnam
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Ramathibodi Hospital
Bangkok, 10400, Thailand
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St. Jude Children's Research Hospital
Memphis, Tennessee, 38105, United States