Global survey reveals what hemophilia b patients really know about gene therapy
NCT ID NCT05044845
First seen Nov 15, 2025 · Last updated May 16, 2026 · Updated 22 times
Summary
This study interviewed 150 people with hemophilia B, their caregivers, and healthcare workers from around the world to find out what they know and think about gene therapy. The goal is to create better educational materials and improve the consent process, especially in countries with limited resources. No treatment was given; this was a fact-finding effort.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Civil Service Hospital
Kathmandu, Nepal
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Hospital Dos De Mayo
Lima, Peru
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National Hospital of Sri Lanka
Colombo, 01000, Sri Lanka
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National Institute of Hematology and Blood Transfusion
Hanoi, Vietnam
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Ramathibodi Hospital
Bangkok, 10400, Thailand
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St. Jude Children's Research Hospital
Memphis, Tennessee, 38105, United States
Conditions
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