Scientists launch 3-Year hunt for clues to heart risks in rare disease
NCT ID NCT05063435
Summary
This study aims to better understand how a group of rare genetic disorders, called mucopolysaccharidoses (MPS), affects heart and blood vessel health over time. Researchers will follow 30 patients for three years, using annual heart ultrasounds, neck artery scans, and blood tests to track changes. The goal is to gather detailed information about disease progression, not to test a new treatment.
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Contacts and locations
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Locations
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Children's Hospital of Orange County
Orange, California, 92868, United States
Conditions
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