Massive german registry aims to unlock secrets of rare sarcomas
NCT ID NCT04122872
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This registry is collecting information from up to 9,000 people in Germany with sarcoma or carcinosarcoma. Researchers will track how often different subtypes occur, how they progress, and what treatments patients receive. The goal is to better understand these rare cancers and improve future care.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this registry could provide crucial insights into how common and how serious different sarcoma subtypes are, helping guide future research and treatment strategies.
- What could go wrong
- As an observational registry, this study does not test any new treatment, so it will not directly improve patient outcomes. The data quality depends on consistent reporting from many hospitals.
This is an AI summary of the original study and may miss details. Read our disclaimer.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Asklepios Klinik St. Georg
RECRUITINGHamburg, 20099, Germany
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Barmherzige Brüder Regensburg
RECRUITINGRegensburg, Germany
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Chirurgische Universitätsklinik Mannheim
RECRUITINGMannheim, Germany
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HELIOS Klinikum Bad Saarow
RECRUITINGBad Saarow, Germany
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HELIOS Klinikum Berlin-Buch
RECRUITINGBerlin, Germany
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Klinikum Frankfurt Höchst
RECRUITINGFrankfurt, Germany
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Klinikum Nürnberg
RECRUITINGNuremberg, Germany
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Krankenhaus Nordwest KHNW
RECRUITINGFrankfurt, Germany
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Uniklinik Freiburg
RECRUITINGFreiburg im Breisgau, Germany
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Uniklinikum Leipzig
RECRUITINGLeipzig, Germany
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Uniklinikum Regensburg
RECRUITINGRegensburg, Germany
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University Hospital Halle (Saale)
RECRUITINGHalle, Germany
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Universitätsklinikum Erlangen
RECRUITINGErlangen, Bavaria, 91054, Germany
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Universitätsklinikum Erlangen
RECRUITINGErlangen, Germany
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Universitätsklinikum Tübingen
RECRUITINGTübingen, Baden-Wurttemberg, 72076, Germany
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Universitätsklinikum Würzburg
RECRUITINGWürzburg, Germany
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Universitätsmedizin Greifswald
RECRUITINGGreifswald, Germany
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Universitätsmedizin Göttingen
RECRUITINGGöttingen, Germany
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Universitätsmedizin Mainz
RECRUITINGMainz, Germany
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Vivantes Klinikum Berlin-Spandau
RECRUITINGBerlin-Spandau, Germany
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Westfälische Wilhelms-Universität Münster
RECRUITINGMünster, Germany
More trials for these conditions
Other studies related to the condition(s) this trial covers.
- Can a Tumor-Injected drug combo outlast standard care in advanced sarcoma?
- Can engineered immune cells tackle childhood sarcoma?
- Can a Patient's own immune cells be engineered to fight a rare sarcoma?
- Can a Patient's own immune cells fight advanced sarcoma?
- Could a massive tissue bank unlock sarcoma's secrets?
- Can a new protein drug shield kids with cancer from dangerous infections?