Gene therapy patients monitored for 15 years to spot hidden side effects

NCT ID NCT04266093

First seen Jun 27, 2026 · Last updated Jul 31, 2026 · Updated 4 times

Summary

This study follows up to 1,000 adults who previously received gene therapy in a National Cancer Institute study. Researchers will contact participants yearly for up to 15 years to check for any long-term side effects, such as new cancers or nerve problems. No new treatments are given; the goal is to collect safety data for the FDA.

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Conditions

The condition(s) this trial relates to.

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • National Institutes of Health Clinical Center

    Bethesda, Maryland, 20892, United States

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