Study reveals hidden struggles of families caring for scleroderma patients
NCT ID NCT04917146
First seen Nov 01, 2025 · Last updated May 14, 2026 · Updated 29 times
Summary
This study looked at the experiences of family members who care for someone with systemic sclerosis, a rare and serious autoimmune disease. Researchers surveyed 50 caregivers to understand their physical, mental, and social challenges. The goal is to use this information to create better support and education programs for caregivers.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Locations
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Rhumatology Service
Paris, 75014, France
Conditions
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