Hidden heroes: study sheds light on family caregivers of scleroderma patients
NCT ID NCT04917146
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study looked at the experiences of family members who care for someone with systemic sclerosis (scleroderma), a rare and serious disease. Researchers surveyed 50 caregivers to understand their physical, mental, and social challenges. The goal is to use this information to create better support programs for caregivers.
This is an AI summary of the original study and may miss details. Read our disclaimer.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for CAREGIVERS are added.
By submitting, you agree to our Terms of use
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
-
Rhumatology Service
Paris, 75014, France
More trials for these conditions
Other studies related to the condition(s) this trial covers.
- Could a facebook group ease the emotional toll on hospice caregivers?
- Immune clues in the blood may foretell heart trouble
- Blood particles may reveal hidden clues to scleroderma complications
- Could a simple injection dissolve painful calcium lumps in rare diseases?
- New program aims to empower male caregivers through community health worker training
- Finger injections aim to loosen stiff hands in scleroderma