Rare disease study seeks to understand family coping
NCT ID NCT07497581
First seen Jun 24, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This study looks at how children with rare diseases and their families adjust emotionally over time. Researchers will survey 240 families in German-speaking areas, asking about stress, coping, and communication. Some families will also report daily experiences via smartphone. The goal is to learn what helps families thrive, so better support can be designed.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this study could point toward better psychological support and targeted interventions for families coping with pediatric rare diseases.
- What could go wrong
- This is an observational study, not a treatment trial. It will not directly cure or treat any disease, and findings may not apply to all families or rare conditions.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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University Children's Hospital Zurich
Zurich, 8008, Switzerland
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