Rare disease study seeks to understand family coping
NCT ID NCT07497581
First seen Jun 24, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This study looks at how children with rare diseases and their families adjust emotionally over time. Researchers will survey 240 families in German-speaking areas, asking about stress, coping, and communication. Some families will also report daily experiences via smartphone. The goal is to learn what helps families thrive, so better support can be designed.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this study could point toward better psychological support and targeted interventions for families coping with pediatric rare diseases.
What could go wrong
This is an observational study, not a treatment trial. It will not directly cure or treat any disease, and findings may not apply to all families or rare conditions.
Disclaimer
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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University Children's Hospital Zurich
Zurich, 8008, Switzerland