Scientists track daily stress in families coping with rare childhood illnesses
Knowledge-focused
Not yet recruiting
This study aims to understand how children with rare diseases and their parents cope emotionally and mentally over time. It will follow 240 families for a year, using surveys and daily smartphone check-ins to track stress, communication, and well-being. The goal is to learn what …
Sponsor: Markus A. Landolt • Aim: Knowledge-focused
Last updated Mar 30, 2026 14:35 UTC