European launch of major AL amyloidosis registry aims to unlock disease mysteries
NCT ID NCT06205953
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study is creating a large European registry of 400 newly diagnosed AL amyloidosis patients. Researchers will collect medical data and blood samples to study the disease using advanced technology. The goal is to better understand how AL amyloidosis develops and progresses, which could lead to improved diagnosis and treatment in the future. Participants must be at least 18 years old, newly diagnosed, and willing to provide samples and follow-up information.
This is an AI summary of the original study and may miss details. Read our disclaimer.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for AL AMYLOIDOSIS are added.
By submitting, you agree to our Terms of use
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
-
Fondazione IRCCS Policlinico San Matteo, Pavia, Viale Golgi 19, 27100
RECRUITINGPavia, Italy
-
Instituto de Investigación Sanitaria de Navarra (IdiSNA) C. de Irunlarrea, 3, 31008 Pamplona, Navarra
RECRUITINGPamplona, Spain
-
Medical Department, Amyloidosis Center, University Hospital, Im Neuenheimer Feld 672
RECRUITINGHeidelberg, Germany
-
UMC Utrecht, dept Hematology, Amyloid Expertise Center, Utrecht, Heidelberglaan
RECRUITINGUtrecht, Netherlands
-
Universidad de la Republica Hospital de Clinicas "Dr Manuel Quintela"
RECRUITINGMontevideo, Uruguay
-
University of Applied Sciences and Arts Northwestern Switzerland, Institute of Medical Engineering and Medical Informatics
ACTIVE_NOT_RECRUITINGMuttenz, Switzerland
More trials for these conditions
Other studies related to the condition(s) this trial covers.
- Can a Dual-Targeting antibody stop amyloid buildup in its tracks?
- Can a radioactive peptide spot hidden amyloid in the heart?
- Real-world data on multiple myeloma immunotherapies could reshape monitoring and improve survival
- Nationwide registry aims to crack the code of a rare protein-clogging disease
- New scan spots hidden organ damage before symptoms start
- Could a simple scan unlock better heart treatment?