European launch of major AL amyloidosis registry aims to unlock disease mysteries
NCT ID NCT06205953
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study is creating a large European registry of 400 newly diagnosed AL amyloidosis patients. Researchers will collect medical data and blood samples to study the disease using advanced technology. The goal is to better understand how AL amyloidosis develops and progresses, which could lead to improved diagnosis and treatment in the future. Participants must be at least 18 years old, newly diagnosed, and willing to provide samples and follow-up information.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Fondazione IRCCS Policlinico San Matteo, Pavia, Viale Golgi 19, 27100
RECRUITINGPavia, Italy
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Instituto de Investigación Sanitaria de Navarra (IdiSNA) C. de Irunlarrea, 3, 31008 Pamplona, Navarra
RECRUITINGPamplona, Spain
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Medical Department, Amyloidosis Center, University Hospital, Im Neuenheimer Feld 672
RECRUITINGHeidelberg, Germany
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UMC Utrecht, dept Hematology, Amyloid Expertise Center, Utrecht, Heidelberglaan
RECRUITINGUtrecht, Netherlands
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Universidad de la Republica Hospital de Clinicas "Dr Manuel Quintela"
RECRUITINGMontevideo, Uruguay
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
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University of Applied Sciences and Arts Northwestern Switzerland, Institute of Medical Engineering and Medical Informatics
ACTIVE_NOT_RECRUITINGMuttenz, Switzerland