Patients' voices heard: new survey aims to reveal true burden of rheumatic diseases

NCT ID NCT06461000

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study is an online survey for 1,000 adults diagnosed with a rheumatic or musculoskeletal disease living in a EULAR country. Participants will answer periodic questionnaires about their healthcare, social life, and work. The goal is to gather real-world data to help researchers and doctors better understand the disease burden and improve patient care.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this survey could provide a clearer picture of the real-world burden of rheumatic diseases, helping improve care and support for patients.

What could go wrong

This is an observational survey, not a treatment trial. It will not test any new drug or therapy, and results depend on honest, complete responses from participants.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

Collagen Diseases musculoskeletal system disorder rheumatic disorder

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • EULAR

    RECRUITING

    Kilchberg, Canton of Zurich, 8802, Switzerland

    Contact Phone: •••-•••-•••• Email: •••••@•••••