Real-World study tracks Epidyolex's Long-Term impact on seizures

NCT ID NCT05772429

Ongoing Disease control Sponsor: Jazz Pharmaceuticals Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study follows 158 people in France who are prescribed Epidyolex (a cannabidiol-based medicine) for seizures as part of their normal care. Researchers will track how long people stay on the treatment, side effects, seizure frequency, and changes in daily functioning and quality of life over two years. The goal is to understand how well Epidyolex works in real-world settings outside of controlled clinical trials.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance: Epidyolex (cannabidiol oral solution)
What this could lead to: If successful, this study could confirm how well Epidyolex works in everyday practice and help doctors better manage seizures long-term.
What could go wrong: This is an observational study, not a controlled trial, so results may be influenced by other factors. It does not test a new treatment, only monitors existing use.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Get updates

Get notified about this study

Our safety recommendation!

By submitting, you agree to our Terms of use

Conditions

The condition(s) this trial relates to.

epilepsy visual epilepsy

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

SEIZURES

Contacts and locations

Locations

APHM - Marseille - service adulte

Marseille, 13005, France
APHP Kremlin Bicetre - service enfant

Le Kremlin-Bicêtre, 94270, France
APHP Necker - service enfant

Paris, 75743, France
APHP Pitié Salpetriere- service adulte

Paris, 75013, France
APHP Robert Debré - service enfant

Paris, 75019, France
CHU Amiens-service adulte

Amiens, 80054, France
CHU Amiens-service enfant

Amiens, 80054, France
CHU Angers - service adulte

Angers, 49100, France
CHU Angers - service enfant

Angers, 49100, France
CHU Bordeaux - service adulte

Bordeaux, 33000, France
CHU Bordeaux,neuropédiatrie

Bordeaux, 33000, France
CHU Dijon - service neurophysiologie clinique

Dijon, 21000, France
CHU Grenoble - service adulte

Grenoble, 38700, France
CHU Grenoble - service enfant

Grenoble, 38700, France
CHU Lille - service enfant

Lille, 59037, France
CHU Nancy - service adulte

Nancy, 54000, France
CHU Nancy - service enfant

Nancy, 54000, France
CHU Rennes - service adulte

Rennes, 35000, France
CHU Rennes - service enfant

Rennes, 35200, France
CHU Strasbourg - service enfant

Strasbourg, 67200, France
CHU Toulouse - service adulte

Toulouse, 31059, France
CHU Toulouse - service enfant

Toulouse, 31059, France
GH Est - Hôpital Femme Mère Enfant

Bron, 69500, France
HCL - Lyon - service adulte

Bron, 69677, France
Hôpital Bretonneau - service adulte

Tours, 37000, France
Hôpital Clocheville - service enfant

Tours, 37044, France
Hôpital Salengro - service adulte

Lille, 59037, France
Hôpital de Hautepierre - service adulte

Strasbourg, 67200, France
Hôpital de la Timone - service enfant

Marseille, 13005, France

More trials for these conditions

Other studies related to the condition(s) this trial covers.