Real-World study tracks Epidyolex's Long-Term impact on seizures

NCT ID NCT05772429

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study follows 158 people in France who are prescribed Epidyolex (a cannabidiol-based medicine) for seizures as part of their normal care. Researchers will track how long people stay on the treatment, side effects, seizure frequency, and changes in daily functioning and quality of life over two years. The goal is to understand how well Epidyolex works in real-world settings outside of controlled clinical trials.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance

Epidyolex (cannabidiol oral solution)

What this could lead to

If successful, this study could confirm how well Epidyolex works in everyday practice and help doctors better manage seizures long-term.

What could go wrong

This is an observational study, not a controlled trial, so results may be influenced by other factors. It does not test a new treatment, only monitors existing use.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

epilepsy visual epilepsy

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • APHM - Marseille - service adulte

    Marseille, 13005, France

  • APHP Kremlin Bicetre - service enfant

    Le Kremlin-Bicêtre, 94270, France

  • APHP Necker - service enfant

    Paris, 75743, France

  • APHP Pitié Salpetriere- service adulte

    Paris, 75013, France

  • APHP Robert Debré - service enfant

    Paris, 75019, France

  • CHU Amiens-service adulte

    Amiens, 80054, France

  • CHU Amiens-service enfant

    Amiens, 80054, France

  • CHU Angers - service adulte

    Angers, 49100, France

  • CHU Angers - service enfant

    Angers, 49100, France

  • CHU Bordeaux - service adulte

    Bordeaux, 33000, France

  • CHU Bordeaux,neuropédiatrie

    Bordeaux, 33000, France

  • CHU Dijon - service neurophysiologie clinique

    Dijon, 21000, France

  • CHU Grenoble - service adulte

    Grenoble, 38700, France

  • CHU Grenoble - service enfant

    Grenoble, 38700, France

  • CHU Lille - service enfant

    Lille, 59037, France

  • CHU Nancy - service adulte

    Nancy, 54000, France

  • CHU Nancy - service enfant

    Nancy, 54000, France

  • CHU Rennes - service adulte

    Rennes, 35000, France

  • CHU Rennes - service enfant

    Rennes, 35200, France

  • CHU Strasbourg - service enfant

    Strasbourg, 67200, France

  • CHU Toulouse - service adulte

    Toulouse, 31059, France

  • CHU Toulouse - service enfant

    Toulouse, 31059, France

  • GH Est - Hôpital Femme Mère Enfant

    Bron, 69500, France

  • HCL - Lyon - service adulte

    Bron, 69677, France

  • Hôpital Bretonneau - service adulte

    Tours, 37000, France

  • Hôpital Clocheville - service enfant

    Tours, 37044, France

  • Hôpital Salengro - service adulte

    Lille, 59037, France

  • Hôpital de Hautepierre - service adulte

    Strasbourg, 67200, France

  • Hôpital de la Timone - service enfant

    Marseille, 13005, France