Could your environment trigger this rare muscle disease?

NCT ID NCT01276470

First seen Jun 26, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study investigates whether certain environmental exposures—like infections, stress, or sun exposure—are more common in people with anti-synthetase syndrome, a rare autoimmune condition that causes muscle weakness and lung disease. Researchers will compare 580 participants, including myositis patients with and without the syndrome, and healthy volunteers. Participants complete questionnaires and provide blood, urine, and house dust samples to identify potential triggers.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this could help identify environmental triggers for anti-synthetase syndrome, potentially guiding future prevention strategies.

What could go wrong

This is an observational study, not a treatment trial. It may not find clear links, and results may not apply to all patients.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

autoimmune disease dermatomyositis juvenile dermatomyositis juvenile polymyositis myositis disease polymyositis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Brigham and Women's Hospital

    COMPLETED

    Boston, Massachusetts, 02115, United States

  • Johns Hopkins University

    COMPLETED

    Baltimore, Maryland, 21205, United States

  • Mayo Clinic, Rochester

    COMPLETED

    Rochester, Minnesota, 55905, United States

  • Mid-Atlantic Kaiser Permanente

    COMPLETED

    Rockville, Maryland, 20853, United States

  • NIEHS Clinical Research Unit (CRU)

    RECRUITING

    Research Triangle Park, North Carolina, 27709, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • National Institutes of Health Clinical Center

    RECRUITING

    Bethesda, Maryland, 20892, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • University of Miami Hospital

    WITHDRAWN

    Miami, Florida, 33101, United States

  • University of Pittsburgh

    COMPLETED

    Pittsburgh, Pennsylvania, 15261, United States