New parent support programme shows promise for families of children with complex needs
NCT ID NCT06310681
First seen Jun 26, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This pilot study tested a community-based group programme called 'Encompass' for parents of children under 5 with complex neurodisability. Fifteen parents in East London attended ten group sessions over six months. The study aimed to see if the programme was feasible and acceptable, and whether a larger trial could be run. Parents also filled out questionnaires and were interviewed about their experiences.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
Active substance
Encompass group programme (behavioural intervention)
What this could lead to
If successful, this programme could provide a supportive model to help parents cope and feel empowered while caring for a child with complex neurodisability.
What could go wrong
This is a very small pilot study with only 15 participants, so results may not apply to other settings. The programme is still being tested for feasibility, not yet proven to improve outcomes.
Disclaimer
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the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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Barts Health NHS Trust, Children's Occupational Therapy, Mile End Hospital
London, E1 4EH, United Kingdom
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East London NHS Foundation Trust, Specialist Children's and Young People's Services
London, E15 4PT, United Kingdom