New tool helps young sickle cell patients take charge of their treatment decisions
NCT ID NCT05383911
First seen Nov 21, 2025 · Last updated May 14, 2026 · Updated 21 times
Summary
This study tests a program that helps teens and young adults (ages 15-25) with sickle cell disease work with their doctors to choose the best treatment. About 68 patients, their families, and 8 doctors will take part. The program includes virtual reality or standard education materials to support shared decision-making.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Nemours Children's Hospital, Delaware
RECRUITINGWilmington, Delaware, 19803, United States
Conditions
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