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Joint surgery outcomes in Ehlers-Danlos syndrome put to the test

NCT ID NCT05137379

Knowledge-focused Sponsor: GCS Ramsay Santé pour l'Enseignement et la Recherche Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed This study
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jul 16, 2026 · Last updated Jul 17, 2026 · Updated 1 time

Summary

This study looks at how well joints like the shoulder, knee, ankle, elbow, and wrist work after orthopedic surgery in people with Ehlers-Danlos syndrome, a condition that affects connective tissue. Researchers are using standard joint function scores to measure outcomes in 200 adult patients. The goal is to better understand surgical results in this specific group.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

200 people

The number who actually took part.

Started

Mar 2021

Finished

Mar 2022

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

Patient over 18 years-old, suffering from Ehler-Danlos syndrome treated with surgery

Ages

18 years and older

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Patient over 18 years-old suffering from Ehlers-Danlos Syndrome and belonging to the EDS cohort of Raymond Poincaré Hospital in Garches * Patient with joint involvement of the shoulder treated by surgery * Patient with ankle joint damage treated by surgery * Patient with joint damage to the knee treated by surgery * Patient with elbow joint damage treated by surgery * Patient with joint involvement of the wrist treated by surgery * Patient affiliated or beneficiary of a social security scheme * Patient who has been informed of the research and does not object to the use of his data. Exclusion Criteria: * Patient objecting to the use of their data

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Conditions

The condition(s) this trial relates to.

Ehlers-Danlos syndrome

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Ehlers-Danlos syndrome

Contacts and locations

Locations

  • Clinique Maussins-Nollet

    Paris, 75019, France

  • Hôpital Raymond Poincaré

    Garches, Île-de-France Region, 92380, France

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