Cure My Disease

Don't miss your cure!

 Log in / Sign up

Scientists launch international registry to crack the code of ultra-rare cancer EHE

NCT ID NCT06408441

Recruiting now Knowledge-focused Sponsor: Fondazione IRCCS Istituto Nazionale dei Tumori, Milano Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study creates a registry to collect information from 100 adults newly diagnosed with epithelioid hemangioendothelioma (EHE), an ultra-rare sarcoma. Researchers will track patients over time to understand how the disease progresses, what factors affect outcomes, and which treatments are used. The goal is to improve knowledge and care for this rare cancer.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for EPITHELIOID HEMANGIOENDOTHELIOMA are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Conditions

The condition(s) this trial relates to.

epithelioid hemangioendothelioma sarcoma soft tissue sarcoma

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

EPITHELIOID HEMANGIOENDOTHELIOMA SARCOMA, SOFT TISSUE

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Aarhus University Hospital

    RECRUITING

    Aarhus, Aarhus, 8200, Denmark

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Azienda Ospedaliera Universitaria San Luigi Gonzaga

    RECRUITING

    Orbassano, Torino, 10043, Italy

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Azienda Ospedaliero Universitaria Careggi

    RECRUITING

    Careggi, Firenze, 50134, Italy

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Campus Großhadern

    NOT_YET_RECRUITING

    München, Germany

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Centre Oscar Lambret

    NOT_YET_RECRUITING

    Lille, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Essen University Hospital

    RECRUITING

    Essen, Hesse, 45147, Germany

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Fondazione IRCCS Istituto Nazionale dei Tumori

    RECRUITING

    Milan, Milan, 20133, Italy

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Hospital Universitario Fundación Jiménez Díaz

    RECRUITING

    Madrid, Madrid, 28040, Spain

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Email: •••••@•••••

  • IRCCS Istituto Clinica Humanitas

    RECRUITING

    Rozzano, Milano, 20089, Italy

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Instituto Português Oncologia do Porto Francisco Gentil

    NOT_YET_RECRUITING

    Porto, Portugal

    Contact Email: •••••@•••••

  • Istituto Nazionale dei Tumori Regina Elena

    RECRUITING

    Roma, Roma, 00144, Italy

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Istituto Oncologico Veneto

    RECRUITING

    Padova, Padova, 35128, Italy

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Istituto Ortopedico Rizzoli

    RECRUITING

    Bologna, Bologna, 40136, Italy

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Léon Bérard Center

    RECRUITING

    Lyon, Lyon, 69008, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Maria Skłodowska-Curie Institute of Oncology

    RECRUITING

    Warsaw, Warsaw, 00-001, Poland

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Nuovo Ospedale di Prato "S.Stefano"

    RECRUITING

    Prato, Prato, 59100, Italy

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Policlinico Universitario P. Giaccone

    RECRUITING

    Palermo, Palermo, 90127, Italy

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Sahlgrenska University Hospital

    RECRUITING

    Gothenburg, Göteborg, 413 45, Sweden

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • The Royal Marsden Hospital

    RECRUITING

    London, London, SW3 6JJ, United Kingdom

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • University Hospital Graz

    RECRUITING

    Graz, Graz, 8036, Austria

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Università Campus Bio-Medico

    RECRUITING

    Roma, Roma, 00128, Italy

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Vall d'Hebron University Hospital

    RECRUITING

    Barcelona, Barcelona, 08035, Spain

    Contact Phone: •••-•••-•••• Email: •••••@•••••

More trials for these conditions

Other studies related to the condition(s) this trial covers.