Virtual clinic aims to boost genetic testing in families with heart disease

NCT ID NCT06431425

First seen Jun 26, 2026 · Last updated Jun 26, 2026

Summary

This study tests an online clinic (eCG Family Clinic) that helps families with inherited heart conditions get genetic counseling and DNA testing from home. Researchers will see if more family members use the service and how satisfied they are compared to standard care. About 170 participants, including patients and their relatives, will take part.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance

eCG Family Clinic (online genetic counseling tool)

What this could lead to

If successful, this could make genetic counseling and testing more accessible for families with inherited heart conditions, potentially increasing early detection and treatment.

What could go wrong

This is a behavioral intervention study, not a drug trial. It may not significantly improve uptake or satisfaction, and results may not apply to all populations or conditions.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

cardiogenetic disease dilated cardiomyopathy familial dilated cardiomyopathy familial hypertrophic cardiomyopathy

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • University Medical Centre Utrecht

    RECRUITING

    Utrecht, Utrecht, 3584 CX, Netherlands

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••