Spain launches major effort to map a rare muscle disease
NCT ID NCT07385443
Summary
This study is creating a national patient registry in Spain for people with Myotonic Dystrophy Type 1 (DM1), a rare genetic muscle disease. It aims to collect detailed health information from up to 3,000 participants to better understand how the disease varies and progresses over time. The goal is to build a comprehensive picture of DM1 to help guide future research and identify patients for clinical trials.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Email: •••••@•••••
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Contact
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Locations
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Andalusia, Spain
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Basque Country, Spain
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Canary Islands, Spain
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Cantabria, Spain
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Castilla-La Macha, Spain
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Catalonia, Spain
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Madrid, Spain
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Valencia, Spain
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Conditions
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