Massive spanish study launches to map a rare muscle disease

NCT ID NCT07385443

Summary

This study aims to create a detailed national picture of Myotonic Dystrophy Type 1 (DM1) in Spain. It will enroll up to 3,000 people with DM1 to collect their health information over time in a central registry. The goal is to better understand how the disease progresses and to identify people who might be suitable for future research studies.

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Hospitals within the DM1 network

    RECRUITING

    Multiple Locations, Andalusia, Spain

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Hospitals within the DM1 network

    RECRUITING

    Multiple Locations, Basque Country, Spain

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Hospitals within the DM1 network

    RECRUITING

    Multiple Locations, Canary Islands, Spain

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Hospitals within the DM1 network

    RECRUITING

    Multiple Locations, Cantabria, Spain

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Hospitals within the DM1 network

    RECRUITING

    Multiple Locations, Castilla-La Macha, Spain

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Hospitals within the DM1 network

    RECRUITING

    Multiple Locations, Catalonia, Spain

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Hospitals within the DM1 network

    RECRUITING

    Multiple Locations, Madrid, Spain

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Hospitals within the DM1 network

    RECRUITING

    Multiple Locations, Valencia, Spain

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

Conditions

Explore the condition pages connected to this study.