New app aims to ease tough choices for brain injury families

NCT ID NCT05671874

Completed Knowledge-focused Sponsor: University of Massachusetts, Worcester Source: ClinicalTrials.gov ↗

First seen Jun 24, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This pilot study tested a web-based tool designed to improve communication and decision-making between doctors and families of patients with severe acute brain injuries, such as stroke or traumatic brain injury. The tool helps prepare families for their role as decision-makers and gives doctors tailored patient information. The study enrolled 50 surrogate decision-makers to see if the tool is feasible and easy to use.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance: web/mobile/tablet-based digital decision aid and communication tool
What this could lead to: If successful, this tool could improve how families and doctors make difficult decisions together for patients with severe brain injuries.
What could go wrong: This is a small pilot study with only 50 participants, so results may not apply to all hospitals or families. The tool is meant to support decisions, not change medical outcomes.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

Brain Injuries, Traumatic Hemorrhagic Stroke intracerebral hemorrhage ischemic stroke traumatic brain injury

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

ACUTE ISCHEMIC STROKE HEMORRHAGIC STROKE, INTRACEREBRAL TRAUMATIC BRAIN INJURY

Contacts and locations

Locations

Johns Hopkins Bayview Medical Center

Baltimore, Maryland, 21224, United States
Johns Hopkins Hospital

Baltimore, Maryland, 21287, United States
UMass Memorial Hospital

Worcester, Massachusetts, 01655, United States

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